It’s been a while since a post. We’ve been busy and Abe’s intensive physio continues…
So it’s been just over a year since Abe had his SDR Surgery - yes a year! Abe is improving, he is changing, he is getting stronger. It sometimes doesn’t feel that way, especially for me as I see him every day, but he’s definitely not the child he would have been without SDR!
I think that at one year post op, my dream, my ideal, would be for Abe to be walking independently at least at home. He can, but he’s not. A lot of it is due to his confidence, a lot due to his very strong character, but I guess some of it is that he just doesn’t feel ready.
I’ve also noticed a difference in his attitude in the last couple of weeks, he is less reluctant to walk on his own, as long as I’m behind him, ‘to catch me Mummy in case I fall’. He moves a little faster than he did before, especially if he knows you are there, and now we are just waiting on the next step, where he choses to bridge a gap between the furniture without a second thought. I’ve noticed a few other things recently too. He is able to get up the step at our backdoor using his sticks, but all by himself (his favourite phrase!). It’s a struggle for him and the amount of effort it involves is huge, but he can do it. He is also climbing the stairs with ease, using his sticks, and with one of us holding the handles to keep him steady. We’ve been teaching him how to climb himself, using the bannister for support and he is getting very good, especially coming down which can be quite a tricky move for a child with CP.
We’re trying to allow him more freedom now that he is at an age where he can make better judgements, such as crawling up or down the stairs without supervision (eek!) His best buddy Issy likes to look after him and told us yesterday that she would call us if he needed to come downstairs! They also had an endearing conversation where Issy told him his sticks were quite heavy and he said ‘yes I know, I have to walk with them!’ He’s also found a way to get down the different levels in our garden without using the steps, but without any help, which is great as we know when he is out there he is safer.
It’s all these little milestones that make all the physio and the constant nagging worthwhile. The big milestones will come… soon I hope!