18 months post op!

It’s been a while. What’s been going on with Abe many of you have been asking….

Abe has now started pre-school. He’s going every morning, and is exhausted! We are trying to make sure we keep going with all his therapies at the same time and I suspect we may be overdoing it. He has horse riding twice a week, physio, and swimming!

Abe has continued to make steady progress over the summer, he’s still walking with support but he is much stronger. He has new splints, which are excellent quality and give him a great heel toe strike. However, he still has weakness in his left hip. This weakness is quite noticeable with the new splints as he hits the ground with his heel first and then the hip cannot control the movement so his foot tends to naturally rotate inwards. We are considering some lycra shorts which will give some support to the hip and encourage a better pattern.

Two weeks ago, Abe received some new sticks, which are like traditional walking sticks, but are very light and he is taking to them very well. His strength, balance and independent walking have improved considerably already. We are trying to motivate him to walk independently at home, and as a reward we told him we will buy him a remote control helicopter. He is now very wise to these ‘bribes/motivational techniques’ and has tried to talk me into buying it after a good swimming session!!! He’s a little monkey.

Abe has recently started asking more about his Cerebral Palsy. He is aware that most other children can walk on their own and has asked when he got his Cerebral Palsy, and when will it go away. It is very upsetting, but we hope some good will come of his awareness as he might put in more effort and push himself a little more. We would like to think that he will not be beaten, if he is anything like Gavin and I, nothing will stop him!

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Abe’s Adventure turned 2 today!

Abe’s Adventure turned 2 today!

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Abe had to wait quite a while for his new splints to be tweeked. He was very patient, he had lots of entertainment - Planes, Dragons and Pingu!

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Fun in the sun

Fun in the sun

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It’s been too long

Eek, I haven’t posted an update since May! So what has Abe been up to?

We spent two weeks at Footsteps Therapy Centre in Oxford. Abe was fantastic for every session. He really enjoyed it and despite the hard work, he had a smile for Aga and Beatta every day. By midway through his second week he could walk down the entire corridor with just Memo Sandals for support. Absolutely amazing. His core strength improved tenfold and his confidence was high.

Midway through his Footsteps course, we had Auntie Rowan’s wedding. Abe was a page boy and Thea a flower girl. Abe walked down the aisle, hand in hand with Gavin, and on the way back out insisted on his tripod sticks being brought to him! We were on a high.

For about 2 or 3 weeks afterwards though he was uncooperative, unwilling to do much and wouldn’t even try walking independently. Our usual bribes were shunned. We felt like he just couldn’t be bothered! Abe was in fact exhausted. It wasn’t until a few weeks on, when he “got his mojo back”, that we realised we’d pushed him so hard but hadn’t given him a break. We just want Abe to have the ultimate independence, walking without aids, but unfortunately it’s not going to be a quick fix and we need to reset our expectations.

Thankfully he now seems to be back on track. His walking with the tripods is amazing, he’s nearly running! Everyone has commented on how fantastic he looks, how straight he is and what great progress he is making. He’s a little superstar!

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